Early-onset dementia: the impact on family caregivers
Flynn and Mulcahy (2013) used a conceptual model of caregiver burden to examine the impact of early onset dementia on caregivers. The authors found that most participants had a negative experience of getting a diagnosis, and that there was a physical, social and emotional burden associated with care giving. Caregivers particularly referred to the financial burden for those with early onset dementia who may be at the height of their working life. They also reported the impact of changing relationships and of the lack of knowledge and resources to support them.
FLYNN, R. and MULCAHY, H., 2013. Early-onset dementia: the impact on family caregivers. British journal of community nursing, 18(12), pp. 598-606.