What do people with dementia and their carers want to know about neuroimaging for dementia?

Featherstone et al. (2015) used focus groups and structured interviews to investigate people with dementia and carers' knowledge of dementia diagnosis pathways, the role of neuroimaging in diagnosis and what might be included on a website providing neuroimaging information. Results indicated very limited understanding of neuroimaging and its role in diagnosis. Participants felt that better explanations could reduce anxiety and also add validity to a diagnosis, with the potential for avoiding diagnosis denial. While both carers and people with dementia were keen to have more information on neuroimaging they pointed out that the information needs to be focused on the person with dementia and carer’s specific needs. People with dementia were found to be unlikely to use an internet resource, but carers were particularly interested in such a resource. Again, they wanted this to be specific to the stage and sub type of dementia they had experience of. Findings indicate a level of dissatisfaction with current resources on dementia and a need for any information to be perceived as trustworthy and accurate. The authors conclude there is a need for better neuroimaging information and that this research can inform the development of an online resource and the investigation of other methods for providing information.
Title: 
What do people with dementia and their carers want to know about neuroimaging for dementia?
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Date: 
2015
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References: 
Featherstone, H., Butler, M.L., Ciblis, A., Bokde, A.L., Mullins, P.G. and McNulty, J.P., 2017. What do people with dementia and their carers want to know about neuroimaging for dementia?. Dementia, 16(4), pp.461-470.