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Users may use the search function to find links to journals, books, policy papers and surveys and databases related to dementia in the Republic of Ireland and Northern Ireland. Users can search by keyword or theme and then use filters to refine results by content type, year and themes.

Planning for the Future Project Initiating End of Life Discussion with People with Dementia, Final Report Phase 1 (Undated)

Hayden, C., Parke, M., Lynch, M., Kelly, S.
Irish Hospice Foundation, HSE
2015

This report produced by the Irish Hospice Foundation and the HSE documents the results of a joint project based in ROI between a residential care facility for older people and a specialist palliative care in-patient unit that aimed to develop a framework to support staff to engage in end of life

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care discussions with residents.  The project took an action research approach and includes a series of planned actions to address: staff difficulties in initiating discussion; confidence in engaging with residents on this topic and on dealing with difficult situations; recording information gathered;  recognising the dying phase; finding clarity between palliative care and end of life care; supporting families.  A post project evaluation was completed six months later and a series of future action plans is included.

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The Development of End of Life Care Standards for People with End Stage Dementia (Undated)

CAHILL, S., DORAN, D., WATSON, M.
CARDI
2015

This report documents a study comprising two phases; phase one completed a qualitative enquiry into how 16 older spouse caregivers had experienced their spouses’ end of life care in a long stay care environment in ROI and NI.

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Phase two involved the development and dissemination of draft guidelines to assist Nursing Homes to develop policies and practices on end of life care for residents. The draft guidelines were then amended based on feedback from health professionals based in both jurisdictions. Most spousal caregivers participating in the study were satisfied with the level of care received by their spouse. The draft guidelines focused on five key areas: person-centred care; good personal care; staff training; a partnership approach with the nursing home fully integrated into local health care systems; a shared approach to care.

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