Including people with dementia in research

The article in this subsection starts from the premise that only people with dementia can articulate the real experience of living with dementia. It examines how one particular method can and has been used for conducting focus groups for people with moderate and severe dementia. 

Using focus groups to interview persons with moderate and severe dementia

Current Nursing Journal

Casey and Murphy (2014) reviews the use of focus groups in conducting research and people with dementia and describes how focus groups were used with a purposive sample of people with moderate and severe dementia attending a respite centre to explore the attributes that they valu

ed most in professional carers.  Following the CORTE interviewing guide, they found that people with moderate and severe dementia participated and engaged well in the focus groups and stimulated each other’s engagement. They appeared to enjoy the focus groups and were able to offer invaluable information on what they most valued in professional carers - kindness, gentleness, humour, and carers willing to meaningful engage with their preferred activities. The authors conclude that focus groups have potential for use in collecting data from people with moderate and severe dementia.