Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies.

Murphy et al. (2015) aimed to identify key strategies to include people with dementia in qualitative research in a meaningful way. A number of studies were examined to identify strategies previously used or proposed by researchers and a guideline developed. The four main areas within the guide are gaining COnsent, maximising Responses, Telling the story and Ending on a high. Having developed the CORTE guideline, the authors then searched relevant literature to examine the extent to which the literature articulated these strategies. Of the 30 studies reviewed, few articulated the CORTE strategies and the second part of this paper focuses on their operationalisation within a large national study DARES. The authors describe the process involved in using each of the 4 strategies within this study and some of the points they highlight are the complex and intensive nature of gaining consent, the time required to build relationships that support the development of trust and rapport, and the essential nature of flexibility. They conclude that researchers must be trained and know how to choose and use the right tools and strategies to maximise meaningful involvement of persons with dementia.
Title: 
Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies.
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Date: 
2015
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References: 
Murphy, K., Jordan, F., Hunter, A., Cooney, A. and Casey, D., 2015. Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies. Dementia, 14(6), pp.800-824.