Inclusion of People with Dementia in the Design of Services
This learning paper from Genio starts by presenting some recent developments in involving people with dementia in service design and outlines the many benefits of doing so. The next section of the paper focuses on the practice of involving people with dementia, and looks at the different ways in which people with dementia can be involved. It distinguishes between co-design, co-production and co-creation and what they mean in the process of problem-solving, and also explains the difference between user-led and professional-led design. In discussing how to involve people with dementia in the design of services, the paper examines the ways of communication with people with dementia, involving people with dementia in wider groups and supports needed to do this. It points out that sometimes a separate process is needed to involve people with dementia and highlights the importance of creating a listening culture. Finally, the paper outlines the perceived barriers to involving people with dementia in the design of services, some of which were identified by people with dementia themselves and others by the participants in a Genio workshop on the topic, but helpfully solutions are proffered for each perceived barrier.