Respite in dementia: An evolutionary concept analysis

In this article, O’Shea et al. (2017) focus on respite and how it is conceptualised. A concept analysis of the conceptual and empirical literature was adopted. A range of surrogate terms were identified, falling into two clusters, respite as a service and respite as an outcome. The study identified two distinct, but inter-related categories previously associated with the concept of respite: client factors and services factors. The former includes five factors (dyadic relations, recognising and accepting need, carer psychological needs, restorative occupation and stigma) and the latter four factors (the service model and characteristics, care quality and staff expertise, meaningful occupation for the person with dementia, and communication and support]. For the carer, respite must be seen as mutually beneficial for both the carer and the person with dementia. The article reports that the evidence shows mixed outcomes in relation to respite. It outlines a conceptual model for respite as it relates to dementia. The article compares the parallels and dissimilarities with concept analysis of respite in the area of older people and intellectual disabilities. Respite as a term it is argued is limited because of its almost exclusive concentration on the experiences of the carer. An alternative term ‘restorative care’ is proposed instead to describe the process whereby both the carer and the person with dementia can mutually benefit from the experience.
Respite in dementia: An evolutionary concept analysis
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O’Shea, E., Timmons, S., O’Shea, E., Fox, S. and Irving, K. (2017) Respite in dementia: An evolutionary concept analysis, Dementia: The International Journal for Research and Practice