Staff perceptions of essential prerequisites underpinning end-of-life care for persons with intellectual disability and advanced dementia

This paper by McCarron et al. (2010b) discusses three key themes emerging from focus groups with staff working in ID care settings and a specialist palliative care provider in ROI supporting persons with an intellectual disability and dementia at the end of life. The three key themes were: readiness to respond to end of life care needs; the fear of swallowing difficulties and environmental concerns, and ageing in place.

Title: 
Staff perceptions of essential prerequisites underpinning end-of-life care for persons with intellectual disability and advanced dementia
Date: 
2010
References: 

MCCARRON, M., MCCALLION, P., FAHEY-MCCARTHY, E. and CONNAIRE, K., 2010b. Staff perceptions of essential prerequisites underpinning end-of-life care for persons with intellectual disability and advanced dementia. Journal of Policy & Practice in Intellectual Disabilities, 7(2), pp. 143-152.