Supporting Carers

In this section of the review you can expect to find articles exploring the experience of carers, the impact of caring, both physically and psychologically, the role of other health professionals in supporting carers and any approaches that might support someone caring for a person with dementia.

Mental Health and Morbidity of Caregivers and Co-Residents of individuals with Dementia: A Quasi-Experimental Design.

Maguire, A., Rosato, M. and O’Reilly, D.

International journal of geriatric psychiatry

2016

The Northern Ireland Mortality Study (NIMS) is a prospective study, which is unique in that it links Census returns with deaths that are subsequently registered. For this study by Maguire et al.

…

(2016), data from the 2011 Census were linked with subsequent deaths records from the General Register’s Office which were followed up for 33 months. Using the Census 2011 returns, 19,863 people were identified as having ‘dementia symptoms’, used in this study as a proxy for cognitive decline. People who co-resided with a person with dementia symptoms and who either self-identified as a caregiver or non-caregiver were enumerated. The caregivers were better educated, living in more affluent households, and had better physical and mental health than non-caregivers. Caregivers providing intense levels of care were older and more likely to be women. The study found that caregiving co-residents were at no greater risk of poor mental health than non-caregiving co-residents. The analysis revealed that caregiving co-residents were 33% less likely to die during the study period than non-caring co-residents and this percentage was greater for caregivers providing intense levels of care, suggesting, in keeping with some other studies, a significant mortality advantage associated with caregiving. The findings of this study highlight the important of assessing both the risks and benefits of caring for a relative with dementia.

Pharmacological Approaches
Psycho-social Approaches
Access to Care
Conceptual frameworks for thinking about dementia
Policy and legislation
Acute Care
Community Care
Intellectual disability and dementia
Prevalence and Costs
Long -Term Care
Reducing the Risk or Delaying the Onset of Dementia
Awareness, knowledge and attitudes
Palliative/End of Life Care
Housing, the built environment and ICT
Professional Practice
Assessment, diagnosis and disclosure
Including people with dementia in research
Mobility, Driving and Safety
Supporting People with Dementia
Supporting Carers
Journal articles

A.
A.M.
A.P.
ABIDAN, Z.
Abraha, I., Rimland, J.M., Trotta, F.M., Dell’Aquila, G., Cruz-Jentoft, A., Petrovic, M., Gudmundsson, A., Soiza, R., O’Mahony, D., Guaita, A. and Cherubini, A.
ABRAHAM., R.
Adelaja, B
AFZAL, N.
Ahessy, B.
Alzheimer Research Trust
Alzheimer’s Society
ARCHER, N.
Argyle, E.
ASI
AUGUSTO, J.
Azure
B., CUNNINGHAM, C.
B., WECKMANN, M.
BALLARD
BALLARD, J.
Bantry White, E. and Montgomery, P
BARBER, J.
BARR, S.
BARRETT, A.
Barrett, S.
BARRY, H.E.
Barry, H.E., Cooper, J.A., Ryan, C., Passmore, A.P., Robinson, A.L., Molloy, G.J., Darcy, C.M., Buchanan, H. and Hughes, C.M.
Barry, H.E., Parsons, C., Passmore, A.P. and Hughes, C.M.
BASU, S.
Beck, E.R., McIlfatrick, S., Hasson, F. and Leavey, G
BELINSKI, K.
BENNETT, K.
Berber, J.
Bieber, A., Stephan, A., Verbeek, H., Verhey, F., Kerpershoek, L., Wolfs, C., de Vugt, M., Woods, R.T., Røsvik, J., Selbaek, G. and Sjölund, B.M.
Bobersky, A.
BRADLEY, A
Brady, A-M., Bracken-Scally, M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Ciblis, A., Pittalis, C. and McCarron, M.
Brady, A-M., Ciblis, A., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Bracken-Scally, M., McCarron, M.
BRAYNE, C.
Brazil, K., Carter, G., Cardwell, C., Clarke, M., Hudson, P., Froggatt, K., McLaughlin, D., Passmore, P. and Kernohan, W.G.
Brazil, K., Carter, G., Galway, K., Watson, M. and van der Steen, J.T.
Brazil, K., Galway, K., Carter, G. and van der Steen, J.T.
Brennan, S., Lawlor, B., Pertl, M., O’Sullivan, M., Begley, E. and O’Connell, C.
BREWER. L.
Briggs, R., Coary, R., Collins, R., Coughlan, T., O'neill, D. and Kennelly, S.P.
Briggs, R., Dyer, A., Nabeel, S., Collins, R., Doherty, J., Coughlan, T., O’Neill, D. and Kennelly, S.P.
Briggs, R., O'Shea, E., Siún, A., O'Neill, D., Gallagher, P., Timmons, S. and Kennelly, S
Broda, A., Bieber, A., Meyer, G., Hopper, L., Joyce, R., Irving, K., Zanetti, O., Portolani, E., Kerpershoek, L., Verhey, F. and de Vugt, M.
BROWNE, V.
BRUCE, I.
BUCKLEY, M.
BUHAGIAR, K.
Butler, A., Gallagher, D., Gillespie, P., Crosby, L., Ryan, D., Lacey, L., Coen, R., O'Shea, E. and Lawlor, B.
BYRNE, S.
C.
Cahill
Cahill and Pierce
CAHILL, S.
Cahill, S., O'Nolan, C., O' Caheny, D. and Bobersky, A.
Cahill, S., Pierce, M., Werner, P., Darley, A. and Bobersky, A.
CANAVAN, M.
CARDI
CARDWELL, C.
Carr, D.B. and O’Neill, D.
CARSON, Y.
Carter, G., van der Steen, J.T., Galway, K. and Brazil, K
CASEY, D.
Casey, D., Lynch, U., Murphy, K., Cooney, A., Gannon, M., Houghton, C., Hunter, A., Jordan, F., Smyth, S., Conway, A., Kenny, F., Devane, D., Meskell, P.
CGRATH, M.
Chandaria, K.
Chaoimh, D.N., De Bhaldraithe, S., O'Malley, G., Bhuí, C.M.A. and O’Keeffe, S.T.
CHARD, G.
CHARD, G., 2014
Ciblis, A.S., Butler, M.L., Bokde, A.L., Mullins, P.G., O'Neill, D. and McNulty, J.P.
Ciblis, A.S., Butler, M.L., Bokde, A.L.W., Mullins, P.G. and McNulty, J.P.
Ciblis, A.S., Butler, M.L., Quinn, C., Clare, L., Bokde, A.L., Mullins, P.G. and McNulty, J.P.
Clarke, C.
Cleary, J. and Doody, O.
Cleary, O., and McAvoy, H.
Clifford, C. and Doody, O.
CLUNE, Y.
COAKLEY, D.
Coen, A-M.
COEN, R.
COEN, R. F.
COEN, R., F.
COEN, R.F.
COFFEY, A.
Colomer, J. and de Vries, J.
Comas-Herrera, A
Commissioner for Older People for Northern Ireland
CONNAIRE, K.
CONNOLLY, S.
Connolly, S. and O’Shea, E
Cook, L
COONEY, A.
COONEY, C.
COSGRAVE, M.
Cowley, C.
CROSBY, L.
Cullen, K., Delaney, S., Stapleton, P. and Wynne, R.
CULLINAN, J.
CUMMINS, C.
CUNNINGHAM, C.
Cunningham, E.L., Mc Guinness, B., Herron, B. and Passmore, A.P.
D
D.
Daly Lynn, J., Rondón-Sulbarán, J., Quinn, E., Ryan, A., McCormack, B., and Martinet, S.
DALY, L.
Daly, L., Fahey-McCarthy, E. and Timmins, F.
DAVIDSON, G.
De Siún
De Siún, A.
DE WITT JANSEN
De Witt Jansen, B., Brazil, K., Passmore, P., Buchanan, H., Maxwell, D., McIlfactrick, S.J., Morgan, S.M., Watson, M. and Parsons, C.
De Witt Jansen, B., Brazil, K., Passmore, P., Buchanan, H., Maxwell, D., McIlfatrick, S.J., Morgan, S.M., Watson, M. and Parsons, C.
DELANEY, D.
Dementi Together NI
DEMPSEY, L.
DEMPSEY, O.
Department of Health
DERMOT O’REILLY.
DEVANE, D.
DEVINE, P.
Devine, P. and Lloyd, K.
Devoy, S. and Simpson, E.E.A
DIAZ-PONCE, A.
DINCARSLAN, O
Doherty, U., Hawke, A., Kearns, J., Kelly, M.
Donegan, K., Fox, N., Black, N., Livingston, G., Banerjee, S. and Burns, A.
Donnelly
Donnelly, M
Donnelly, N.
Donnelly, N.A., Humphries, N., Hickey, A. and Doyle, F.
DORAN, D.
Dowds, L.
Dowling, M., Dempsey, L., Larkin, P. and Murphy, K
Downes, C.
Downes, M
Downs, M..
Dowrick, A.
DOWZELL, K.
Dröes, R.M., Chattat, R., Diaz, A., Gove, D., Graff, M., Murphy, K., Verbeek, H., Vernooij-Dassen, M., Clare, L., Johannessen, A. and Roes, M.
DUFFY, A.
DUFFY, J.
DUNLEAVY, C.
DUNN-LANE, J.
EDGEWORTH, J.
EUSTACE, J.
Fahey, A., NíChaoimh, D., Mulkerrin, G.R., Mulkerrin, E.C. and O'Keeffe, S.T.
FAHEY-MCCARTHY, E.
FAITH, V.
Faith, V., Rooney, C., Hadjri, K., McAllister, K. and Craig, C.
Fealy, G.
Featherstone, H., Butler, M.L., Ciblis, A., Bokde, A.L., Mullins, P.G. and McNulty, J.P.
FITZGERALD, D.
FITZGERALD, L.
FITZPATRICK, M.
FLATTERY, M.
FLOOD, J.
FLYNN, B.
FLYNN, R.
Foley, T., Boyle, S., Jennings, A. and Smithson, W.H.
Foley, T., Jennings, A., Boyle, S. and Smithson, W.H.
FOX, C.
Fox, S., FitzGerald, C., Dening, K.H., Irving, K., Kernohan, W.G., Treloar, A., Oliver, D., Guerin, S. and Timmons, S.
Fox, S., Fitzgerald, C., Harrison Dening, K., Irving, K., Kernohan, W.G., Treloar, A., Oliver, D., Guerin, S. and Timmons, S.
FOY, C.
FREYNE, A.
GALLAGHER, D.
Gallagher, P.
Gallagher, P., Curtin, D., de Siún, A., O’Shea, E., Kennelly, S., O’Neill, D. and Timmons, S.
GALLAGHER, P.F.
GAO, Y.
GAYLE, V.
Gibbons, D.
GIBSON, F.
GILL., M.
GILLESPIE, P.
Gillespie, P., O’Shea, E., Cullinan, J., Buchanan, J., Bobula, J., Lacey, L., Gallagher, D., Mhaolain, A.N. and Lawlor, B.
Glynn, R.W., Shelley, E. and Lawlor, B.A.
Gray, A.M.
Gray, B., Allison, S.,Thomas, B., Morris, C., and Liddell, C.
Green, G.
Guerchet, M
HADJRI, K.
HARDING-LESTER, S.
HARRINGTON, P.
Hayden, C.
Hennelly, N. and O’Shea, E.
HIGGINS, A.
HOLLINGSWORTH, P.
Hopper, L., Hughes, S., Burke, T. Irving, K.
Houghton, C., Murphy, K., Brooker, D. and Casey, D.
Hu, B
HUGHES, C.
HUGHES, C.M
HUGHES, C.M.
HUNTER, A.
Hunter, A., Keady, J., Casey, D., Grealish, A. and Murphy, K.
INNES, A
INNES, A.
Irish Hospice Foundation
IRISH, M.
IRVING, K
Irving, K.
J.
JACKSON, D.
JAMES, I.A.
Jansen, B.D.W., Brazil, K., Passmore, P., Buchanan, H., Maxwell, D., McIlfatrick, S.J., Morgan, S.M., Watson, M. and Parsons, C.
Janssen, E.P., de Vugt, M., Köhler, S., Wolfs, C., Kerpershoek, L., Handels, R.L., Orrell, M., Woods, B., Jelley, H., Stephan, A. and Bieber, A.
Janus, S.I., van Manen, J.G., IJzerman, M.J. and Zuidema, S.U.
Jennings, A.A., Foley, T., McHugh, S., Browne, J.P. and Bradley, C.P.
JORDAN, F.
Kane
Kane, M.
KEANE, R.
KELLY, F
Kelly, I., Butler, M.L., Ciblis, A. and McNulty, J.P.
Kelly, M.E., Finan, S., Lawless, M., Scully, N., Fitzpatrick, J., Quigley, M., Tyrrell, F., O’Regan, A. and Devane, A.
Kelly, S.
Kennelly, S.P.
Keogh, F., Howard, E., Maguire, M. and de Siun, A
Keohane, K. and Balfe, M.
Kerpershoek, L., de Vugt, M., Wolfs, C., Jelley, H., Orrel, M., Woods, B., Stephan, A., Bieber, A., Meyer, G., Engedal, K. and Selbaek, G.
Kerpershoek, L., de Vugt, M., Wolfs, C., Woods, B., Jelley, H., Orrell, M., Stephan, A., Bieber, A., Meyer, G., Selbaek, G. and Handels, R.
Kilcullen, S.
KILLICK, J.
KILROY, D.
King, D
Knapp, M
LACEY, L.
LACEY, L., GALLAGHER, D.
Lafferty, A
Laird, E.A., McGurk, P., Reid, B. and Ryan, A.
LAKEMAN, R
Lakey, L.
Lane
Lane, M.
LAWLOR, B., A.
LAWLOR, B.A
LAWLOR, B.A.
LAWLOW, B.A.
Leavey, G., Abbott, A., Watson, M., Todd, S., Coates, V., McIlfactrick, S., McCormack, B., Waterhouse-Bradley, B. and Curran, E
LENNOX, R.
Leonard, M., McInerney, S., McFarland, J., Condon, C., Awan, F., O’Connor, M., Reynolds, P., Meaney, A.M., Adamis, D., Dunne, C., Cullen, W., Trzepacz, P.T. and Meagher, D.J.
Liddell, C., Morris, C., Gray, B., Czerwinska, A. and Thomas, B.
LISTON, R.
LOVESTONE, S.
LUPTON, M.K.
LYNCH, A.
Lynch, M.
M
M.
MacConville
Magee, M., McCorkell, G., Guille, S. and Coates, V.
MAGUIRE, A.
Maguire, A., Rosato, M. and O’Reilly, D.
MANLEY, D.
Manning M.
MANNING, E.
Manning, M.
MANTHORPE, J.
MARTIN, S.
McArdle, D.
MCCALLION, P.
MCCARRON, M.
McCarron, M., McCallion, P., Reilly, E., Dunne, P., Carroll, R. and Mulryan, N.
MCCOLLUM, P.
McCorkell, G., Harkin, D., McCrory, V., Lafferty, M. and Coates, V.
MCCORRY, N.
McCrone, P
MCCULLAGH, P.
MCDONALD, M.
MCDONNELL, E.
McGarrigle, L.
MCGLADE, C.
MCGREEVY, C.
MCHUGH, J.
MCHUGH, J.E.
McKinney, A.
MCMANUS, M.
MCPARLAND, P.
McParland, P., Kelly, F. and Innes, A
Meiland, F., Innes, A., Mountain, G., Robinson, L., van der Roest, H., García-Casal, J.A., Gove, D., Thyrian, J.R., Evans, S., Dröes, R.M. and Kelly, F.
MERRIMAN, N.
MHAOLAIN, A.
Milton, S.
MITCHELL, E.A.
Mitchell, G
MITCHELL, G.
Mitchell, G., McCormack, B. and McCance
MOLLEY, W.D.
MOLLOY, D. W.
MONAGHAN, C.
MOONEY, M.
MOORE, V.
MORAN, P.S.
Morandi, A., Davis, D., Bellelli, G., Arora, R.C., Caplan, G.A., Kamholz, B., Kolanowski, A., Fick, D.M., Kreisel, S., MacLullich, A. and Meagher, D.
MORGAN-BROWN, M.
MORRISSON, P.J.
Moss, H. and O’Neill, D.
MUKHTAR, O.
MULCAHY, H.
Mulqueen, K. and Coffey, A.
MULRYAN, N.
MULVENNA, M.
Mulvenna, M., Hutton, A., Coates, V., Martin, S., Todd, S., Bond, R. and Moorhead, A.
Mulvenna, M.D.
MURPHY
Murphy, E
MURPHY, E.
MURPHY, K.
Murphy, K., Jordan, F., Hunter, A., Cooney, A. and Casey, D.
MURPHY, L.
MURPHY, M
MURRAY, C.
NCCAILLON, P.
NEWELL, J.
NEWTON, R.
NGUYEN, C.M.
NI MHAOLAIN, A.
Novitzky, P., Smeaton, A.F., Chen, C., Irving, K., Jacquemard, T., O’Brolcha, F., O’Mathuna, D. and Gordijnet, B
Nugent, C.D.
O'CONNOR, C
O'CONNOR, E.
O'Keefe, S.
O'MAHONY, D.
O'Rourke, H.M., Duggleby, W., Fraser, K.D. and Jerke, L.
O'SHEA, E
O'SHEA, E.
O'Shea, E. and Monaghan, C
O'Shea, E. and Monaghan, C.
O'SULLIVAN, D.
ORMEROD, M.
OWEN, M.J.
O’Brien, N.
O’CALLAGHAN, C.
O’CAOIMH, R.
O’Carroll, T., Glynn, K., Lyons, D. and Looney, K
O’Connell. H.
O’Donnell, C.A., Browne, S., Pierce, M., McConnachie, A., Deckers, K., van Boxtel, M.P., Manera, V., Köhler, S., Redmond, M., Verhey, F.R. and Van den Akker, M.
O’Donnell, C.A., Manera, V., Köhler, S. and Irving, K.
O’HANLON. S.
O’KEEFE, E.
O’KEEFE, S.T.
O’KEEFFE, S.T.
O’MARA, S.M.
O’NEILL
O’NEILL, D.
O’NEILL, M.
O’Shea
O’Shea, E.
O’Shea, E. and Carney, P.
O’Shea, E. and Monaghan, C.
O’Shea, E., Cahill, S. and Pierce, M.
O’Shea, E., Timmons, S., Kennelly, S., Siún, A.D., Gallagher, P. and O’Neill, D.
O’Shea, E., Timmons, S., O’Shea, E., Fox, S. and Irving, K.
Paris
Paris, C.
Parke, M.
PARSONS, C.
Parsons, C., McCann, L., Passmore, P. and Hughes, C.
PASSMORE, A.P.
PASSMORE, P.
PATTERSON, S.
PEARSON, K.C.
Pertl, M.M., Hannigan, C., Brennan, S., Robertson, I.H. and Lawlor, B.A.
Petrazzuoli, F., Vinker, S., Koskela, T.H., Frese, T., Buono, N., Soler, J.K., Ahrensberg, J., Asenova, R., Boreu, Q.F., Peker, G.C. and Collins, C.
Phelan, A.
Piasek, P.
Pierce, M
PIERCE, M.
PIERCE, M., A.
Pierce, M., Grey, T., Cahill, S. and Dyer, M.
POPPE, M.
POWELL., J.F
Power, C., Duffy, R., Bates, H., Healy, M., Gleeson, P., Lawlor, B.A. and Greene, E..
PRENDERGAST, D. K
PRENDERGAST, D.K.
Prina, M
Prince, M
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Quince, C.
Rehill, A
REID, A.
REILLY, E.
Reilly, E. and Mulryan, N.
Richardson, S.J., Davis, D.H., Bellelli, G., Hasemann, W., Meagher, D., Kreisel, S.H., MacLullich, A.M., Cerejeira, J. and Morandi, A.
RIGNEY, E.
Roantree, M., O’Donoghue, J., O’Kelly, N., Pierce, M., Irving, K., Van Boxtel, M. and Köhler, S.
ROBINSON, S.
RUBINSZTEIN, D.
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RYAN, A.A.
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RYAN, M.
S. and Pierce M.
Salimkumar, D.
Sancarlo, D., D’Onofrio, G., Oscar, J., Ricciardi, F., Casey, D., Murphy, K., Giuliani, F. and Greco, A.
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Savage, G.
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Sullivan, D.O., Mannix, M. and Timmons, S.
Tasker, J.
Taylor, B.J., Stevenson, M. and McDowell, M.
TELJEUR, C.
The Irish Hospice Foundation
TIMMONS, S.
Timmons, S., Manning, E., Barrett, A., Brady, N.M., Browne, V., O’Shea, E., Molloy, D.W., O'Regan, N.A., Trawley, S., Cahill, S. and O'Sullivan, K.
Timmons, S., O’Shea, E., O’Neill, D., Gallagher, P., de Siún, A., McArdle, D., Gibbons, P. and Kennelly, S
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van der Steen, J.T., Radbruch, L., de Boer, M.E., Jünger, S., Hughes, J.C., Larkin, P., Gove, D., Francke, A.L., Koopmans, R.T., Firth, P. and Volicer, L.
Vaughan, R.M., McGee, C., Guerin, S., Tyrrell, J. and Dodd, P.
WALL, M.
WALL, O.
WALLACE, J.
WALSH, C.
WALSH, J.
WALSH, J.B.
Walsh, K.A., O'Regan, N.A., Byrne, S., Browne, J., Meagher, D.J. and Timmons, S.
WANG, H.
WARREN, A.
WATSON, M.
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WHERTON, J.P.
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action plan
acute care
acute hospital
Acute hospitals
advance care planning
advance directives
age
ageing
aggression
ambient assistive living technology
antipsychotic medication
art
assessment
assistive technology
attitudes
Audit
awareness
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BPSD
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delayed onset
delirium
delphi panel
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dementia.
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design
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ethics,
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GP
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nursing home
nutrition
occupation
occupational space
occupational therapy
older people
ong-stay residential care
pain
pain assessment
pain management
Palliative
palliative care
participatory arts
perceptions
person-centred care
personal budget
personalisation
personhood
pervasive health care technologies
pharmacology
pharmacy
physician
policy
policy,
practice
Prescription
prevalence
prevalence,
prevention
professional practice
projections
psycho-social perspective
psychological stress
psychotropic medication
public awareness
public health
quality of care
quality of life
Radiology
recovery
regional variations
reminiscence
research
respite
retirement age
retirement age.
review
risk
screening
self-efficacy
self-neglect
services
sexuality
social care
social engagement
social gerontology perspective
social health
spiritual supports
spouse
staff care burden
staff support
staff training
staffing
stigma
stigma.
strategy
students
support
sustainability
theoretical perspectives
tragedy discourse
training
understanding
variant CJD
views of carers
views of people with dementia
VIPS
walking