BMC health services research

The evaluation of a healthcare passport to improve quality of care and communication for people living with dementia (EQuIP): a protocol paper for a qualitative, longitudinal study.

Leavey, G., Abbott, A., Watson, M., Todd, S., Coates, V., McIlfactrick, S., McCormack, B., Waterhouse-Bradley, B. and Curran, E
BMC health services research
2016
The Northern Ireland Public Health Agency, the Royal College of GPs and a consortium of voluntary sector organisation and service users developed a Health Care Passport to be used by people with dementia and their informal carers.
This paper sets out the protocol to be used in evaluating whether the passport is acceptable and useful for this population. By adopting a qualitative longitudinal approach informed by critical realist review the authors argue they will facilitate a deeper evaluation of how it worked, for whom and in what context. Leavey et al. (2016) discuss the current barriers to holistic care for people with dementia and the pressure on family carers to meet the gaps in current service provision. They then describe how participants will be recruited and prepared for using the passport, the process of participant interview and passport content analysis. While acknowledging the potential benefits of the passport they point to the potential variables in its success or failure and to the essential nature of such an evaluation of the effectiveness of the passport across circumstances, time and a range of users.

Perspectives of policy and political decision makers on access to formal dementia care: expert interviews in eight European countries

Broda, A., Bieber, A., Meyer, G., Hopper, L., Joyce, R., Irving, K., Zanetti, O., Portolani, E., Kerpershoek, L., Verhey, F. and de Vugt, M.
BMC health services research
2017
This paper by Boda et al. (2017) reports on a piece of work carried out as part of the Access to Timely Formal Care (ActifCare) project.
Interviews with policy makers and political decision makers were completed across eight countries to establish their perspectives on access to formal care for people with dementia and their carers. A key theme to emerge was the need for a co-ordination role to help people navigate the care system. Access to information was also identified as an essential precursor to accessing services. Experts were agreed that formal services should be person centred, tailored to individual needs and multidisciplinary. Public awareness was also identified with experts highlighting the need for educational and mass media campaigns targeting improved awareness and a reduction in stigma. The authors conclude that the experts are well acquainted with current discussions and approaches to improving dementia care.

Access to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study.

Kerpershoek, L., de Vugt, M., Wolfs, C., Jelley, H., Orrel, M., Woods, B., Stephan, A., Bieber, A., Meyer, G., Engedal, K. and Selbaek, G.
BMC health services research
2016
Kerpershoek et al. (2016) detail the study protocol used in the access to timely formal dementia care in Europe (ACTIFCARE) project.
This European study included participants from eight countries, including Ireland, and focused on increasing understanding of why people in the middle stages of dementia and their informal covers use or fail to use formal care services. The paper details the measures being used to assess met and unmet needs, quality of life and the programme timetable. The authors highlight the potential for development of best practice care strategies to improve access to care across Europe.
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