Republic of Ireland

The Irish Health Survey

Central Statistics Office
2015
The Irish Health Survey (IHS) is the Irish version of the European Health Interview Survey (EHIS), providing data on health status, health care usage and health determinants. It allows for health comparisons to be made across Europe.

TUDA (The Trinity, University of Ulster and Department of Agriculture Study) Ageing Cohort Study

Joint Irish Nutri-Genomics Organisation
2012

TUDA is a cross border research project. It gathers data on approximately 2,000 older people in NI and 3,000 in ROI, including people with cognitive impairment.

Detailed physical and cognitive assessments as well as biomarkers and genetic markers are carried out and it includes data on health of participants including anthropometric, bone, cognitive function, frailty, health & lifestyle and biochemical and genetic data.

Nursing Homes Ireland Annual Survey of Private and Voluntary Nursing Homes

Nursing Homes Ireland
2014

The Nursing Homes Ireland annual survey of private and voluntary long stay beds (http://www.nhi.ie/index.php?p=annual_survey) collects data on long-stay residential care in ROI.

Whilst providing useful information on private and voluntary nursing homes, the method of collecting and presenting data differs from the National Register. 

National Register of Public and Voluntary Units and Beds

Health Service Executive

The National Register is one of two systems in place for collecting data on long-stay units and beds in Ireland. Updated on a monthly basis, it collects data on long-stay beds in public and some voluntary settings, including on beds in Specialist Care Units for people with dementia.

It does not collect data on units and beds in private and most voluntary long-stay care settings. 

National Psychiatric In-Patient Reporting System (NPIRS)

NPIRS
2013

Information on people with dementia in long-stay psychiatric hospitals and units, including length of stay, can be obtained from the NPIRS.  

Long-stay Activity Statistics

Information Unit, Department of Health
2013

Provides figures on people with dementia in long-stay residential care setting in ROI, although these figures significantly underestimate the number of people with dementia in such settings.  

Hospital In-Patient Enquiry (HIPE)

Healthcare Pricing Office
2013

HIPE collects data on principal and additional diagnoses (including dementia and other chronic disturbances of cerebral function).

Creator is currrently Healthcare Pricing Office (since 2014). Previously held by Health Research and Information Division of the ESRI, in conjunction with the Department of Health and the Health Service Executive     

Day Care Survey

Health Service Executive
2011

Provides data on the number of day care centres and places that are specifically designated for people with dementia

Alzheimer Society of Ireland Database of Service Utilisation

Alzheimer Society of Ireland

Provides (for management purposes) monthly information on utilisation of ASI dementia specific home care (including in-home respite care and residential respite care services) by people with dementia disaggregated by geographical area. 

TILDA-IDS

Trinity College Dublin

IDS-TILDA is the Intellectual Disability Supplement to TILDA. It is a longitudinal study that researches ageing among people with an intellectual disability aged 40 and over in ROI.

It is the first study of its kind in Europe, and the only study that can directly compare the ageing of people with intellectual disability with that of the general ageing population. It includes a cognitive assessment using four measures: reported diagnosis of memory disorder; self-rated memory, orientation in time, and Test for Severe Impairment.

The reports of the first, second and third waves of data are available at the IDS-TILDA website and can be accessed here.  

McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S. and McCallion, P. (2011) Growing Older with an Intellectual Disability in Ireland: Fist Results from the Intellectual Supplement of The Irish Longitudinal Study on Ageing, School of Nursing and Midwifery, Trinity College Dublin, Dublin.  

Burke, E., McCallion, P. and McCarron, M. (2014) Advancing Years: Different Challenges Wave 2 IDS-Tilda: Findings on the Ageing of People with an Intellectual Disability,  School of Nursing and Midwifery, Trinity College Dublin, Dublin.  

Mary McCarron, Margaret Haigh and Philip McCallion (Eds). (2017) Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA), School of Nursing and Midwifery, Trinity College Dublin, Dublin.  

A series of related reports and publications can be found on the IDS-TILDA website https://www.tcd.ie/tcaid/assets/pdf/wave3report.pdf

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