Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health.

Janssen, E.P., de Vugt, M., Köhler, S., Wolfs, C., Kerpershoek, L., Handels, R.L., Orrell, M., Woods, B., Jelley, H., Stephan, A. and Bieber, A.
Aging & mental health.
The European “Access to Timely Formal Care (ACTIFCARE) study set out to develop best practice so that people with dementia and their informal carers can get access to timely formal care. Eight countries participated including Ireland. In this paper Janssen et al.
(2017) examine caregiver profiles related to quality of life, depression and perseverance. Five profiles were identified, determined by disease related and caregivers characteristics; younger low strain, younger high strain, older high strain. The most vulnerable groups were found to be younger high strain and older high strain. There were statistically significant differences between groups in relation to quality of life, depressive symptoms and perseverance time. The authors suggest the profiles may be useful in the development of tailored interventions to support caregivers.

Perspectives of policy and political decision makers on access to formal dementia care: expert interviews in eight European countries

Broda, A., Bieber, A., Meyer, G., Hopper, L., Joyce, R., Irving, K., Zanetti, O., Portolani, E., Kerpershoek, L., Verhey, F. and de Vugt, M.
BMC health services research
This paper by Boda et al. (2017) reports on a piece of work carried out as part of the Access to Timely Formal Care (ActifCare) project.
Interviews with policy makers and political decision makers were completed across eight countries to establish their perspectives on access to formal care for people with dementia and their carers. A key theme to emerge was the need for a co-ordination role to help people navigate the care system. Access to information was also identified as an essential precursor to accessing services. Experts were agreed that formal services should be person centred, tailored to individual needs and multidisciplinary. Public awareness was also identified with experts highlighting the need for educational and mass media campaigns targeting improved awareness and a reduction in stigma. The authors conclude that the experts are well acquainted with current discussions and approaches to improving dementia care.

Living Matters, Dying Matters: A Palliative and End of Life Care Strategy for Adults in Northern Ireland

Dept. of Health, Social Services and Public Safety

This strategy identifies palliative and end of life care as a continuum of care that can evolve as a person’s condition progresses.

 The five year Strategy sets out a vision and direction for service planning and delivery, within the existing legal framework.  The strategy includes dementia among the chronic conditions considered and refers to the work already completed in “Dementia; NICE-SCIE Guideline on Supporting People with Dementia and their Carers in Health and Social Care” (NICE 2006). 

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